New Conference Planning Toolkit for Patient Advocacy Organizations

Event Planning Toolkit: Your Comprehensive Guide to Rare Disease Conference Planning

Developed by Simons Searchlight and Global Genes (C) 2024

We’re thrilled to unveil our brand-new Event Planning Toolkit, developed by Simons Searchlight and Global Genes! This comprehensive resource is designed specifically for patient advocacy members, incorporating valuable insights and feedback from our advocacy communities and leading experts.

Inside the toolkit, you’ll find practical resources, templates, and timelines, all crafted from the experiences of fellow advocates in the rare disease community. From pre-conference planning and budgeting to on-site operations and post-event evaluation, this toolkit covers it all.

Our goal is to empower you to confidently plan and host accessible and meaningful events that drive change and foster community. With clear, step-by-step instructions and customizable tools, navigating the complexities of event planning has never been easier.

This toolkit is more than just a guide—it’s an invitation to bring people together, share knowledge, and inspire transformation. Trust in your passion and unique approach as you create extraordinary events that leave a lasting impact.

Explore and download the toolkit today and start planning your next great event!

Download the ‘Event Planning’ toolkit as a PDF in English