New Grant Opportunity: Conference Support for Rare Neurodevelopmental Disorder Communities Participating In Simons Searchlight

We are excited to share that SFARI (Simons Foundation Autism Research Initiative) is offering funding for Patient Advocacy Group (PAG) Family Conferences, focusing on groups within the Simons Searchlight community. This grant aims to enhance the research component of conferences by supporting everything from scientific presentations to in-person research opportunities for families.

Whether your group is new to organizing conferences or has years of experience, this funding can help bring valuable scientific discussions to your community.

Funding Details:

• Name of RFA: “Conference Support for Rare Neurodevelopmental Disorder Communities Participating In Simons Searchlight”
• Three funding tiers available: $2,500, $7,500, and $15,000, based on the level of scientific involvement planned.
• Eligibility: 
  • Open to both established and emerging PAGs. 
  • Conferences must be scheduled between January 2025 and February 2026. 
  • Applicants should be patient advocacy groups (PAGs) for Simons Searchlight Gene/CNV groups who use Simons Searchlight as their major registry. 
    • Preference is given to those communities actively supporting Simons Searchlight recruitment and ongoing engagement within their communities.
• Application Timeline: Applications open on November 7, 2024, and close on March 4, 2025.
• Informational Webinar: SFARI will also be hosting an informational Zoom webinar where SFARI scientists will share funding priorities and answer your questions on Wednesday, December 11, 2024 at 1:00pm EST. Register here.

Learn More and Apply

To learn more about the funding levels, full eligibility criteria, and how to apply, please visit SFARI’s website. Be sure to review the “How to Apply” instructions and FAQs for detailed guidance.

We look forward to seeing your applications and supporting meaningful connections between our community, families, and researchers!

SFARI is committed to fostering diversity, equity, and inclusion by supporting a wide range of communities in advancing autism and neurodevelopmental disorder research.