The Fields’ Journey with KMT2E

What is your family like?

My son is the oldest of our two adopted children.

What do you do for fun?

We love to go to King’s Dominion, the science museum, read, and watch movies.

Tell us about the biggest hardship you face.

My youngest daughter is in hospice at this time.

What about your child puts a smile on your face?

His sense of humor.

What motivates you to participate in research? How has participating in research been helpful for you?

I’m hopeful we can help other families.

How do you feel you are helping Simons Searchlight learn more about rare genetic changes?

I hope we are bringing awareness to KMT2E.

What is one question you wish researchers could answer about this genetic change?

What does this gene mutation do?

What have you learned about your or your child’s genetic condition from other families?

That we have many similarities.

If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?

Embrace being unique.