Who in your family may provide a blood sample?
* Coordinators will let you know if blood will be collected from siblings at this meeting.
Biological Mother
Biological Father
Child with SCN2A
2 Full Siblings*
How does each family member consent for the blood sample?
1ST ACCOUNT
One parent registers for a research account, adds profiles for each child, and completes their consent forms, opting into research sample collection.
Note that many families have completed this portion of registration for one parent and their SCN2A child. If full siblings are attending the meeting and having their blood drawn, please create their profiles and consent from this account.
2ND ACCOUNT
Your child's other biological parent registers for a separate** research account, by following the invitation link, and completes her/his own consent form, opting into research sample collection.
** Anyone over 18 must register for their own research account due to privacy regulations.
If you have questions about how to create accounts or if you want to confirm that you opted into providing a research sample, let us know.
Contact the study coordinators:
coordinator@simonssearchlight.org
1-855-329-5638