Brandon and Selena’s Story

By: the parent of Brandon and Selena, a 7 and 3 year old with a 16p11.2 Deletion

“It get easier, it’s a lot of work but at the end it’s a blessing.”

What is your child’s relationship like with his/her siblings?

Don’t get along very well. Fight, yell, don’t play together

What does your family do for fun?

Parks, games sometimes, sit at home. Travel.

Tell us about the biggest hardship your family faces.

Communication with Brandon, and Selena is a runner

What about your child puts a smile on your face?

When Brandon says a new word. When Selena spins and spins. Playing with them

What motivates you to participate in research?

So I can learn more about my grand kids I’m raising

If you could give one piece of advice to someone recently diagnosed with the genetic change in your family, what would it be?

It get easier, it’s a lot of work but at the end it’s a blessing.

What is one question you wish researchers could answer about your child’s genetic change?

Why does it happen meaning what causes it.

Is there anything else you would like to share with other families?

Love them like the is no tomorrow.