Posts
Parents + Simons Searchlight = Progress
See how joining Simons Searchlight has made it easier to accelerate progress.
Read MoreUnderstanding the Importance of Sharing Your Annual Medical History
Discover the vital role you play in advancing rare disease research with Katina Calakos.
Read MoreJourney of Hope: Families Share Their Stories with Simons Searchlight
Listen to the heartfelt experiences shared by families like yours.
Read MoreDr. Thomas Frazier’s Webcam and AI Study Drives Discovery
Learn more about Dr. Frazier and his innovative study using webcams and AI.
Read MoreWhat is Simons Searchlight? Explained by Dr. Wendy Chung
Get a comprehensive overview about Simons Searchlight.
Read MoreSimons Searchlight Genetic Counselors Supporting Our Participants
Meet some of our Simons Searchlight genetic counselors.
Read MoreSimons Searchlight – Bringing Families and Researchers Together to Advance Science
In this video, families share their participant journey of finding community in Simons Searchlight.
Read MoreHow to Register in Simons Searchlight (a step by step tutorial video)
This video walks you through the entire registration process for Simons Searchlight.
Read MoreHappy Rare Disease Day 2023!
Dr. Chung answers questions from “junior scientists” about this special day for our communities.
Read MoreResearchers Use Simons Searchlight Data to Advance Scientific Discovery
Studying your genetic neurodevelopmental disorder has a long-lasting impact on the future of research.
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