News and Updates

Get important seizure information for your genetic condition.

The Simons Searchlight team is always working to make research participation more accessible!

Provide your perspective on Simons Searchlight’s related activities.

The sense of connection is deeply woven into the greater Simons Searchlight community.

The conference celebrates the stories of the rare disease community.

This collaboration will break down data silos and provide researchers with a rich dataset.

Complete your Annual Seizure Update Survey.

New phenotypic data from Simons Searchlight participants were recently added to SFARI Base.

Read more about our findings from our June 2022 COVID Survey report.

The Simons Searchlight Genetics Team has a special message for our community.